NHS Logo

End of Life and People with Intellectual and Developmental Disability (Record no. 100422)

MARC details
000 -LEADER
fixed length control field 06139nam a22005175i 4500
001 - CONTROL NUMBER
control field 978-3-030-98697-1
003 - CONTROL NUMBER IDENTIFIER
control field DE-He213
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20240729133440.0
007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION
fixed length control field cr nn 008mamaa
008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION
fixed length control field 220611s2022 sz | s |||| 0|eng d
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
ISBN 9783030986971
-- 978-3-030-98697-1
072 #7 - SUBJECT CATEGORY CODE
Subject category code JM
Source bicssc
072 #7 - SUBJECT CATEGORY CODE
Subject category code PSY000000
Source bisacsh
072 #7 - SUBJECT CATEGORY CODE
Subject category code JM
Source thema
245 10 - TITLE STATEMENT
Title End of Life and People with Intellectual and Developmental Disability
Subtitle : Contemporary Issues, Challenges, Experiences and Practice /
250 ## - EDITION
Edition statement 1st ed. 2022.
264 #1 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE
Place of production, publication, distribution, manufacture Cham :
Name of producer, publisher, distributor, manufacturer Springer International Publishing :
-- Imprint: Palgrave Macmillan,
Date of production, publication, distribution, manufacture, or copyright notice 2022.
300 ## - PHYSICAL DESCRIPTION
Physical description XXXIV, 519 p. 4 illus., 1 illus. in color.
Other physical details online resource.
336 ## - CONTENT TYPE
Content type term text
Content type code txt
Source rdacontent
337 ## - MEDIA TYPE
Media type term computer
Media type code c
Source rdamedia
338 ## - CARRIER TYPE
Carrier type term online resource
Carrier type code cr
Source rdacarrier
505 0# - CONTENTS
Contents Chapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices -- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability -- Chapter 3: Suicide and Autism: A Lifespan Perspective -- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities -- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany -- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care -- Chapter 7: Living and Dying Well with Dementia -- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers -- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 -- Chapter 10: Accessible Funerals and People with Intellectual Disability -- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability -- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities -- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability -- Chapter 14: The Process of Dying -- Chapter 15: Use of Do-Not-Resuscitate Orders -- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice -- Chapter 17 End-of Life Resources.
520 ## - ABSTRACT
Abstract Roger J. Stancliffe, PhD FAAIDD FIASSIDD is Professor Emeritus, University of Sydney, Australia. His research aims to make a difference in the lives of people with intellectual disability. He co-edited a special journal issue on end-of-life, is past editor of the Journal of Intellectual & Developmental Disability, and received the AAIDD Research Award. Michele Y. Wiese, PhD MAPS FASID is Adjunct Fellow, School of Psychology, Western Sydney University, Australia. She is also Honorary Senior Research Fellow at the University of Sydney, and Fellow of the Australasian Society of Intellectual Disability. Dr Wiese is consulting editor to three international peer-reviewed journals. Philip McCallion, PhD ACSW FAASWSW FIASSIDD FGSA Director/Professor, School of Social Work, Temple University focuses on caregiver support, dementia, palliative care and service systems. He is co-founder/co-principal investigator/co-applicant of the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging; and National Consultant on Intellectual Disabilities and Dementia, U.S. National Alzheimer's and Dementia Resource Center. Mary McCarron, PhD MA BNS RNID RGN FTCD is Professor of Ageing and Intellectual Disability at Trinity College University of Dublin, Ireland, and Executive Director of the Trinity Centre for Ageing and Intellectual Disability and the National Intellectual Disability Memory Clinic. She is Principal Investigator of The Intellectual Disability to the Irish Longitudinal Study on Ageing- IDS TILDA, and has led extensive longitudinal research in Ireland and internationally on ageing, dementia and end-of-life issues for people with an intellectual disability. This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning.
650 #0 - SUBJECT HEADINGS
Subject term Psychology.
650 #0 - SUBJECT HEADINGS
Subject term Biotechnology.
9 (RLIN) 5393
650 #0 - SUBJECT HEADINGS
Subject term Palliative treatment.
650 #0 - SUBJECT HEADINGS
Subject term Developmental psychology.
9 (RLIN) 5860
650 14 - SUBJECT HEADINGS
Subject term Behavioral Sciences and Psychology.
650 24 - SUBJECT HEADINGS
Subject term Biotechnology.
9 (RLIN) 5393
650 24 - SUBJECT HEADINGS
Subject term Palliative Care.
650 24 - SUBJECT HEADINGS
Subject term Developmental Psychology.
9 (RLIN) 5860
650 24 - SUBJECT HEADINGS
Subject term Biotechnology.
9 (RLIN) 5393
700 1# - ADDED PERSONAL NAME
Added personal author Stancliffe, Roger J.
Relator term editor.
700 1# - ADDED PERSONAL NAME
Added personal author Wiese, Michele Y.
Relator term editor.
700 1# - ADDED PERSONAL NAME
Added personal author McCallion, Philip.
Relator term editor.
700 1# - ADDED PERSONAL NAME
Added personal author McCarron, Mary.
Relator term editor.
710 2# - ADDED CORPORATE NAME
Added corporate author SpringerLink (Online service)
856 ## - ONLINE RESOURCE
Uniform Resource Identifier <a href="#gotoholdings">#gotoholdings</a>
Link text Access resource
245 ## - TITLE STATEMENT
Medium [E-Book]
347 ## - DIGITAL FILE CHARACTERISTICS
File type text file
Encoding format PDF
Source rda
912 ## -
-- ZDB-2-BSP
912 ## -
-- ZDB-2-SXBP
Holdings
Withdrawn status Lost status Damaged status Not for loan Home library Current library Shelving location Date acquired Source of acquisition Total Checkouts Date last seen Uniform Resource Identifier Price effective from Koha item type
        Hillingdon Hospitals Library Services (Hillingdon Hospitals NHS Foundation) Hillingdon Hospitals Library Services (Hillingdon Hospitals NHS Foundation) Online 02/05/2024 Springer Behavioral Science and Psychology   02/05/2024 https://go.openathens.net/redirector/nhs?url=https://doi.org/10.1007/978-3-030-98697-1 02/05/2024 Electronic book
London Health Libraries Consortium Privacy notice and Membership terms and conditions