Personal Health Informatics : Patient Participation in Precision Health / [E-Book]

E-enabled Patient-Provider Communication in Context -- Value-Based Care for Direct Primary Care Model -- Opportunities and Challenges of Implementation in the Trench: e-Concierge Point-of-Care -- Population Health Management and Primary Care Transformation with Care Management -- Safer Homes for Personal Health and Patient Safety -- Health App By Prescription: The German Nation-Wide Model -- Wearable Health Model for Chronic Disease Management -- Patient Electronic Health Records -- Patient Portal for Critical Response during Pandemic: A Case of COVID-19 -- Patient-centered Electronic Health Records -- Incorporating External and Internal Factors into Personal Health: Considerations of the Design for Citizen Health Services -- Experiment and Research Design for Health App -- Early Detection of Mental Decay Through Mobile and Tangible Health Devices -- Mobile Health Platform for Comparative Effectiveness -- Insights about Methods for Analyzing Longitudinal Patient Observations -- Patients as Equal Partners in the Design Process -- Methodology for Person-Centered Design for Citizen Science -- Health Community and Regional Perspective for Health Equality: OurVoice Citizen Science -- Ecosystem of Patient-Centered Research and Information System Design for Caregivers -- Behavioural Science for Digital Health -- Citizen Science for Research from the Patient's Perspective -- Challenges in Leveraging Library & Information Science to Discover Consumer Health Informatics Research -- Opportunities and Future Directions in Consumer Health Informatics Terminology Evolution -- OMOP and ODHSI for Patient-reported Data -- Evaluation of Programs Based on Citizen Initiatives -- Security and Privacy Architecture and Protocols for Compliance Standard for Patient Portal and Patient Sensor Data in Norwegian National Information System -- Framework for Revisiting Health Information Technology for Ethical, Legal, and Social Issues and Evaluation: Telehealth/Telemedicine and COVID-19 -- Ethical Framework for Physicians -- Ethical Framework for Medical Informaticists -- Ethical framework for Business -- Ethical Framework for citizen science research.

This book clarifies consumer and personal health informatics and their relevance to precision medicine and healthcare applications. Personal Health Informatics covers a broad definition of this emerging field, with individuals not simply consuming health but as active participants, researchers and designers in the healthcare ecosystem. The world of health informatics is constantly changing given the ever-increasing variety and volume of health data, care delivery models that shift from fee-for-service to value-based care, new entrants in the ecosystem and the evolving regulatory decision landscape. These changes have increased the importance of the role of patients in research studies for understanding work processes and activities, and the design and implementation of health information systems. Therefore, personal health informatics now provide research tools and protocols to engage within individual contexts when developing solutions, which can improve clinical practice, patientengagement and public health. Personal Health Informatics offers a snapshot of this emerging field, supported by the methodological, practical, legal and ethical perspectives of researchers and practitioners. In addition to being a research reader, this book provides pragmatic insights for practitioners in designing, implementing and evaluating personal health informatics in healthcare settings. It represents an excellent reader for students in all clinical disciplines and biomedical and health informatics to learn from the case studies provided in this emerging field.