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020 _a9783030986971
_9978-3-030-98697-1
024 7 _a10.1007/978-3-030-98697-1
_2doi
072 7 _aJM
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072 7 _aPSY000000
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072 7 _aJM
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245 1 0 _aEnd of Life and People with Intellectual and Developmental Disability
_b : Contemporary Issues, Challenges, Experiences and Practice /
250 _a1st ed. 2022.
264 1 _aCham :
_bSpringer International Publishing :
_bImprint: Palgrave Macmillan,
_c2022.
300 _aXXXIV, 519 p. 4 illus., 1 illus. in color.
_bonline resource.
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
347 _atext file
_bPDF
_2rda
505 0 _aChapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices -- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability -- Chapter 3: Suicide and Autism: A Lifespan Perspective -- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities -- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany -- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care -- Chapter 7: Living and Dying Well with Dementia -- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers -- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 -- Chapter 10: Accessible Funerals and People with Intellectual Disability -- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability -- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities -- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability -- Chapter 14: The Process of Dying -- Chapter 15: Use of Do-Not-Resuscitate Orders -- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice -- Chapter 17 End-of Life Resources.
520 _aRoger J. Stancliffe, PhD FAAIDD FIASSIDD is Professor Emeritus, University of Sydney, Australia. His research aims to make a difference in the lives of people with intellectual disability. He co-edited a special journal issue on end-of-life, is past editor of the Journal of Intellectual & Developmental Disability, and received the AAIDD Research Award. Michele Y. Wiese, PhD MAPS FASID is Adjunct Fellow, School of Psychology, Western Sydney University, Australia. She is also Honorary Senior Research Fellow at the University of Sydney, and Fellow of the Australasian Society of Intellectual Disability. Dr Wiese is consulting editor to three international peer-reviewed journals. Philip McCallion, PhD ACSW FAASWSW FIASSIDD FGSA Director/Professor, School of Social Work, Temple University focuses on caregiver support, dementia, palliative care and service systems. He is co-founder/co-principal investigator/co-applicant of the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging; and National Consultant on Intellectual Disabilities and Dementia, U.S. National Alzheimer's and Dementia Resource Center. Mary McCarron, PhD MA BNS RNID RGN FTCD is Professor of Ageing and Intellectual Disability at Trinity College University of Dublin, Ireland, and Executive Director of the Trinity Centre for Ageing and Intellectual Disability and the National Intellectual Disability Memory Clinic. She is Principal Investigator of The Intellectual Disability to the Irish Longitudinal Study on Ageing- IDS TILDA, and has led extensive longitudinal research in Ireland and internationally on ageing, dementia and end-of-life issues for people with an intellectual disability. This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning.
650 0 _aPsychology.
650 0 _aBiotechnology.
_95393
650 0 _aPalliative treatment.
650 0 _aDevelopmental psychology.
_95860
650 1 4 _aBehavioral Sciences and Psychology.
650 2 4 _aBiotechnology.
_95393
650 2 4 _aPalliative Care.
650 2 4 _aDevelopmental Psychology.
_95860
650 2 4 _aBiotechnology.
_95393
700 1 _aStancliffe, Roger J.
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_4http://id.loc.gov/vocabulary/relators/edt
700 1 _aWiese, Michele Y.
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700 1 _aMcCallion, Philip.
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700 1 _aMcCarron, Mary.
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710 2 _aSpringerLink (Online service)
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245 _h[E-Book]
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